After almost a year with her VNS, I’ve seen a huge decrease in seizures… but an increase in Rett episodes. The hard part is, there’s no cure or real relief for Rett episodes. So with everything her body is already dealing with, I want to ease some of the load where I can. We’re going to start weaning off some of her seizure medication and see how she does. I’ll be sharing this journey with you 💜 #rettsyndrome #disability #fyp #momsoftiktok #epilepsy