𝗡𝗲𝘂𝗿𝗼𝗳𝗶𝗯𝗿𝗼𝗺𝗮𝘁𝗼𝘀𝗶𝘀 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀: 𝗣𝗼𝘀𝗶𝘁𝗶𝘃𝗶𝘁𝘆 𝗪𝗵𝗲𝗻 𝗣𝗼𝘀𝘁𝗶𝗻𝗴⁣ ⁣ Myself and others have been accused of being ‘𝘵𝘰𝘰 𝘱𝘰𝘴𝘪𝘵𝘪𝘷𝘦’ when posting about Neurofibromatosis (NF1).⁣ ⁣ The truth is, we aren’t ignoring the realities of Neurofibromatosis. ⁣ We are choosing to empower and uplift fellow NF1 warriors on what can often be a very challenging journey.⁣ ⁣ We want people to know that it is still possible to enjoy life, find happiness and create meaningful moments despite how NF1 impacts our lives.⁣ ⁣ At the same time, there is already so much negativity online surrounding NF1. A lot of content is filled with fear, hopelessness and worst-case scenarios. ⁣ That does not mean those experiences are not real or valid…because they absolutely are.⁣ ⁣ But constant doom and gloom can sometimes leave people feeling more afraid, isolated, or hopeless about their own situation.⁣ ⁣ Awareness should also include hope.⁣ It should include encouragement.⁣ It should remind people they are more than their diagnosis.⁣ ⁣ Being positive is not denial.⁣ Sometimes, it is survival⁣ ⁣ #nf1 #nfawareness #nfwarrior #fyp #neurofibromatosis ⁣