𝗡𝗙𝟭 𝗶𝗻 𝘁𝗵𝗲 𝗨𝗞: 𝗧𝗵𝗲 𝘀𝘁𝗮𝘁𝗶𝘀𝘁𝗶𝗰𝘀 𝗽𝗲𝗼𝗽𝗹𝗲 𝗱𝗼𝗻’𝘁 𝗵𝗲𝗮𝗿 𝗲𝗻𝗼𝘂𝗴𝗵 𝗮𝗯𝗼𝘂𝘁⁣ ⁣ In the UK, around 25,000 people are living with Neurofibromatosis Type 1 (NF1) - yet so many people have never even heard of it.⁣ ⁣ NF1 affects approximately 1 in every 2,500–3,000 people, making it one of the most common rare genetic conditions.⁣ ⁣ And still, awareness remains incredibly low.⁣ ⁣ Every day in the UK, families are navigating:⁣ • MRI scans⁣ • Hospital appointments⁣ • Chronic pain⁣ • Learning difficulties⁣ • Fatigue⁣ • Anxiety around symptoms and progression⁣ • The emotional impact of living with a lifelong condition⁣ ⁣ NF1 can affect the skin, nerves, brain, bones, eyes and nervous system…but no two people experience it the same way.⁣ ⁣ Some people may have mild symptoms.⁣ Others may face complications that impact everyday life physically and emotionally.⁣ ⁣ What many people don’t realise is that NF1 is more than just a diagnosis.⁣ It affects:⁣ * Confidence.⁣ * Mental health.⁣ * Education.⁣ * Relationships.⁣ * Work.⁣ ⁣ And the constant uncertainty that can come with living with a condition that people rarely understand.⁣ ⁣ Awareness matters because statistics are not just numbers.⁣ They represent real people trying to live normal lives while carrying challenges most others never see.⁣ ⁣ The more people understand NF1, the less alone the community feels.⁣ ⁣ ⁣ #neurofibromatosis #nf1 #nfawareness #nfwarrior #fyp